Search Results

A Guide to Working with Your Gynecologic Cancer Care Team Challenges Faced by Gynecologic Cancer Patients A life-altering diagnosis demands not only answers but compassionate support and guidance. However, healthcare visits can feel hurried or overwhel...

Website: https://research.smartpatients.com/resources/i-amfinding-delight-x3zcr A seasonal story about small joys, shared humanity, and what keeps us going December has a way of sharpening things. The days grow sh...

When standard cancer treatments aren't working, patients face the difficult question: "What's next?" Functional cancer testing offers an emerging approach by directly observing how a patient's living cancer cells respond to different therapies, potentially red...

Website: https://research.smartpatients.com/resources/understanding-pancreatic-cancer-together-patients-talk-about-what-matters-most Smart Patients partnered with PanCAN, the Pancreatic Cancer Action Network, for an Ask the Expert (ATE) session with Dr. Efrat...

Website: https://research.smartpatients.com/resources/i-amliving-one-december-at-a-time What 30 years of Crohn's has taught me about joy, limits, and letting myself off the hook For more than 30 years, Crohn’s has been the unseen force shaping my days. The f...

Dysautonomia affects the body's autopilot—like blood pressure, heart rate, and temperature control. It's hard to explain, often misunderstood, but very real. For millions of Americans living with chronic conditions like ME/CFS, long COVID, and dysautonomia, th...

Website: https://research.smartpatients.com/resources/i-amtrying-to-live-normally-with-gerd A story for GERD Awareness Week – and for this time of year when food, family, and flare-ups collide. Every November, as many gather around holiday tables filled with...

Website: https://research.smartpatients.com/resources/invisible-patients-what-caregivers-wish-the-world-understood When care for a loved one becomes a second full-time job. “I don’t call myself a caregiver. I say I’m married to someone with serious ill...

When a stage 4 cancer patient faced impossible odds, a chance online comment became his lifeline. Don and Ann Jackson In November 2017, Don Jackson and his wife Ann received devastating news that would change their lives forever. Do...

Website: https://research.smartpatients.com/resources/i-am22-to-89-generations-facing-stomach-cancer-together Stomach cancer can strike anyone, from young adults to grandparents. It's one of the few cancers that spans generations, meaning that patients and fa...

Stomach cancer rarely makes headlines—yet it should. In our recent Ask the Expert session, gastro-oncologist Dr. Rutika Mehta underscored just how rapidly the gastric-cancer landscape is shifting, thanks to emerging clinical trials, innovative surgical techniq...

Website: https://research.smartpatients.com/resources/antibiotics-a-shared-responsibility A Patient’s Perspective on the Fight Against Resistant Microbes Introduction: When “Simple” Isn’t Simple “I never imagined that a ‘simple bladder issue’ could lead t...

Website: https://research.smartpatients.com/resources/i-am-choosing-when-to-act-s4kxa A story about decisions, timing, and life with a pancreatic neuroendocrine tumor (pNET) in honor of World Neuroendocrine Cancer Day (November 10) “I was told I had a ...

When you hear the words “kidney cancer,” your world can turn upside down in an instant. For many, it begins with fear. A blur of doctor’s appointments, treatment options, and survival statistics. But in the middl...

Website: https://research.smartpatients.com/resources/i-amblindsided-by-a-whole-new-diseasenbsp I walked into my appointment expecting to talk about cancer scans. The news was good — no new growth, everything stable. Then my nurse glanced at my labs and pause...

When Glenn was diagnosed with cancer in 2010, he entered what he now calls “super dark days.” He felt lost, depressed, scared–and remembers thinking "I didn’t understand 99 percent of what was happening to me, other than that I had a disease." He realized that...

Website: https://research.smartpatients.com/resources/i-amlearning-to-say-the-right-words When someone you care about enters hospice, there’s a quiet fear that takes over. There’s no handbook for this moment, only the ache of wanting to...

From June 16–18, the Smart Patients community hosted an Ask the Expert session with Aaron Abend and Ingrid He of the Autoimmune Registry, an independent nonprofit that’s working to build a shared resource for patients, researchers, and clinicians. The goals of...

Website: https://research.smartpatients.com/resources/from-story-to-strategy-bringing-patient-voices-into-medical-education A Smart Patients practical guide for educators who want to make continuing education more human, evidence-based, and effective. ...

In the darkest moments, sometimes the brightest light comes from unexpected connections across continents. Challenging the Odds When a devoted aunt first reached out to the Smart Patients online sarcoma community about her seven-year-old niece's diagnosis of...