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Website: https://research.smartpatients.com/resources/willing-to-participate-what-gets-in-the-way  A Clinical Trials Awareness Month Report from Smart Patients Clinical Trials Awareness Month is a chance to recognize the people who make medical progres...

Website: https://research.smartpatients.com/resources/when-patients-move-faster-than-peer-review Patient communities are doing rigorous research work that the medical publication system, by necessity, cannot match for speed. We are not complaining about peer ...

Website: https://research.smartpatients.com/resources/i-ambetween-stable-and-well  A space most lupus patients know well lies between what the labs say and what the body knows. For Lupus Awareness Month, the Smart Patients lupus and autoimmune communities sha...

Website: https://research.smartpatients.com/resources/i-ampaying-attention  Today we are celebrating someone who has been at the heart of Smart Patients for 14  years. There aren't enough words to describe how we value Robin, so we will simply say this:  Sma...

Website: https://research.smartpatients.com/resources/the-grief-that-comes-before-the-lossnbsp  An Ask the Expert Conversation with Family Caregiver Alliance In early March, Smart Patients invited experts from the Family Caregiver Alliance  (FCA) for a three...

Website: https://research.smartpatients.com/resources/i-ammaking-the-next-decision  Bladder cancer is the sixth most common cancer in the United States — and one of the most likely to come back. This May, for Bladder Cancer Awareness Month, we are sharing rea...

Website: https://research.smartpatients.com/resources/between-appointments-what-two-sjgrens-doctors-want-you-to-know  For Sjögren's Awareness Month, we did something a little different. Instead of writing from the patient's perspective, we asked two of the mo...

Website: https://research.smartpatients.com/resources/what-chronic-illness-looks-like-from-the-inside  There is a kind of illness that doesn't resolve. It has no finish line, or a final scan. There is no day when you get to stop being a patient. You just... k...

Website: https://research.smartpatients.com/resources/where-sound-baths-meet-surgery-inside-stanfords-head-and-neck-cancer-symposiumnbsp  Oral, Head and Neck Cancer Awareness Week runs April 16-22. To mark it this year, Smart Patients attended the 9th Annual ...

Website: https://research.smartpatients.com/resources/i-am-on-i-am-off-i-amstill-here  April is Parkinson's Awareness Month — and we want to tell you what it's actually like. We are the Smart Patients Parkinson's disease community: people living with Parkinso...

Website: https://research.smartpatients.com/resources/life-is-good-eighteen-years-of-knowing-it K answered our call while sipping her second coffee of the morning. She had gone to bed late. “Retired life,” she says with satisfaction. It’s also a great sports ...

Website: https://research.smartpatients.com/resources/500-calls-and-counting-a-love-letter-to-our-esophageal-cancer-community  April is Esophageal Cancer Awareness Month, and we want to tell you about something remarkable our Smart Patients esophageal cancer ...

Website: https://research.smartpatients.com/resources/meet-pete-the-man-who-keeps-showing-up  Pete Ramsey was playing golf with his brother in Scottsdale when he knew something was terribly wrong. Despite being an active 58 year old, he could barely walk. The...

Website: https://research.smartpatients.com/resources/the-sentence-that-stopped-everything  Why words, missteps, and acknowledgment matters Smart Patients launched a new series called Living With It—a space for the feelings that don't fit anywhere else. The ...

Website: https://research.smartpatients.com/resources/i-amwondering-about-the-blue-flags  On Monday morning, while walking in Washington, DC., I passed by thousands of small blue flags on the National Mall. From a distance, it looked like a wave of color. Up ...

Website: https://research.smartpatients.com/resources/after-ash-2025-what-our-community-wants-to-know  Every year, ASH produces a wave of new findings in blood cancer research. Most of it is written for clinicians. Patients are left to either wade through abs...

Website: https://research.smartpatients.com/resources/i-amliving-in-a-diagnostic-wilderness-6h7bt  Many people with multiple sclerosis (MS) spend months or years waiting for answers while their bodies tell a story medicine is still working to understand. This...

Website: https://research.smartpatients.com/resources/the-weight-of-being-unheard-closing-the-gap-in-obesity-care  You've probably been in that room. Maybe you worked up the courage to bring up your weight, and the conversation didn't go the way you'd hoped. ...

Website: https://research.smartpatients.com/resources/joyce-graffs-50-year-fight-against-vhl When Joyce Graff's husband lost his sight, she didn't know she was beginning a fight that would span five decades, two generations, and help thousands of families wor...

Website: https://research.smartpatients.com/resources/i-amholding-everything-at-once In honor of National Family Caregivers Day Over the past year, caregivers in the Smart Patients community have told us their individual stories in different ways. One story...