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Website: https://research.smartpatients.com/resources/i-amgetting-beyond-the-diagnosis  Fear. Urgency. Love. Desperate questions. Someone trying to move fast enough to help a person they care about. These are the feelings most people are...

Website: https://research.smartpatients.com/resources/i-am-living-between-stable-and-uncertain “Stable” was supposed to be good news. After months of chemotherapy and immunotherapy, the scans showed that the tumors hadn’t grown. For many cancers, that’s a mo...

Website: https://research.smartpatients.com/resources/i-amwriting-a-note-to-my-younger-self January is Cervical Health Awareness Month. For some, it’s a reminder to schedule a Pap test or ask about HPV screening. For others, it can be a moment to reflect on w...

Website: https://research.smartpatients.com/resources/i-amrescued-by-music-2 Movement IV is the last part of the I Am…Rescued by Music series. It returns to this Smart Patients community where shared joy, grief, humor, and milestones live (and sing) together....

Website: https://research.smartpatients.com/resources/i-amrescued-by-music-1  This four-part series traces a conversation the way a song unfolds. Movement III is the quiet, heavy center—where music gives people permission to stay with what hurts.  Movement I...

Website: https://research.smartpatients.com/resources/the-long-wait-life-fertility-and-uncertainty-in-desmoid-tumor-care In mid-December, Smart Patients invited Dr. Dale Shepard, a sarcoma specialist at the Cleveland Clinic and one of the nation’s leading inv...

Website: https://research.smartpatients.com/resources/i-amrescued-by-music-movement-ii-the-long-notes In Movement I, we saw how music gets people through the day—one walk, one chore, one hard hour at a time: Read Movement I. Now, in Movement II, the rhythm sl...

Website: https://research.smartpatients.com/resources/every-six-months-another-scope-patients-and-experts-frame-life-with-fap  For people living with familial adenomatous polyposis (FAP), care is rarely defined by a single moment. It accumulates over time — s...

Website: https://research.smartpatients.com/resources/i-amrescued-by-music  One of the most enduring conversations on Smart Patients began with a simple, honest admission: “I’m feeling blue today.” After going for a walk with music in her headphones and noti...

Website: https://research.smartpatients.com/resources/i-amgrateful-for-you There are lots of ways to measure the accomplishments of a year. At Smart Patients we could count the number of questions answered, stories or toolkits published, or Ask the Expert ses...

Website: https://research.smartpatients.com/resources/checkinginwithdonandann Chapter 1: Don’s Story, April 2025 If you haven’t read the first chapter of this remarkable journey, here’s a quick summary. In 2017, Don Jackson was a stage 4 head and neck cance...

Website: https://research.smartpatients.com/resources/i-ambuilding-a-courageous-communitynbsp When a child becomes sick or suddenly starts looking or acting differently due to illness, something shifts inside a parent. The world narrows to asking yourself: Ho...

Website: https://research.smartpatients.com/resources/the-making-of-a-podcast-behind-the-mic-with-the-first-timers  That’s how Therese described the experience of recording her first podcast. Podcasting offers a chance to pause, listen d...

Website: https://research.smartpatients.com/resources/i-amfinding-delight-x3zcr A seasonal story about small joys, shared humanity, and what keeps us going December has a way of sharpening things. The days grow sh...

Website: https://research.smartpatients.com/resources/understanding-pancreatic-cancer-together-patients-talk-about-what-matters-most Smart Patients partnered with PanCAN, the Pancreatic Cancer Action Network, for an Ask the Expert (ATE) session with Dr. Efrat...

Website: https://research.smartpatients.com/resources/i-amliving-one-december-at-a-time What 30 years of Crohn's has taught me about joy, limits, and letting myself off the hook For more than 30 years, Crohn’s has been the unseen force shaping my days. The f...

Website: https://research.smartpatients.com/resources/i-amtrying-to-live-normally-with-gerd A story for GERD Awareness Week – and for this time of year when food, family, and flare-ups collide. Every November, as many gather around holiday tables filled with...

Website: https://research.smartpatients.com/resources/invisible-patients-what-caregivers-wish-the-world-understood When care for a loved one becomes a second full-time job. “I don’t call myself a caregiver. I say I’m married to someone with serious ill...

Website: https://research.smartpatients.com/resources/i-am22-to-89-generations-facing-stomach-cancer-together Stomach cancer can strike anyone, from young adults to grandparents. It's one of the few cancers that spans generations, meaning that patients and fa...

Website: https://research.smartpatients.com/resources/antibiotics-a-shared-responsibility A Patient’s Perspective on the Fight Against Resistant Microbes Introduction: When “Simple” Isn’t Simple “I never imagined that a ‘simple bladder issue’ could lead t...