Bringing the Patient Voice into GYN Cancer Care Decisions
In support of Clinical Care Options, LLC’ s medical education program, Smarter. Stronger. Together. Education and Resources to Optimize Clinical Outcomes in Gynecologic Cancers, members of the Smart Patients ovarian, endometrial and cervical cancer communities were asked via an online patient survey how certain personal, social, and contextual factors influence their own treatment decisions and treatment goals.
The majority of patients who participated in the survey had a history of ovarian cancer (67%), followed by patients with endometrial cancer (19%).
What Matters Most to Patients with Gynecologic Cancers
Dr. Ritu Salani, Professor and Division Director of Gynecologic Oncology at UCLA Medical Center in Los Angeles, CA shares her perspective about the Smart Patients online survey and shares opportunities for clinician and patient engagement in managing gynecologic disease.
Bringing the Patient Voice in Gynecological Cancer Treatment Decisions from Smart Patients on Vimeo.
Bringing the Patient Voice into Gynecologic Cancer Care Decisions
|
|
While the likelihood of benefit reigns as most important, impact on activities of daily living, burden on family and emotional or mental side effects factor heavily into gynecologic cancer treatment decisions. |
|
|
Communication around diagnostic and molecular testing, risk factors, prognosis, treatment options and goals of treatment could be improved. |
|
|
Where do patients turn for information? Patients generally turn to their doctor and their clinical care team for information about their cancer, but they also rely on websites. |
|
|
Working with your healthcare team 58% of patients report that they are confident or very confident in their ability to work with their healthcare team. |
What Matters to Patients in Making Treatment Decisions?
Download the resources below to learn more about what matters to patients in making treatment decisions, and to access tools you can use with your patients to support shared decision making.
What Are Smart Patients Saying?
You may find this infographic useful in educating care teams and clinicians on patient preferences in treatment decision making.
Patient Preference Survey Tool
You may find this survey tool useful in finding out more about your patients’ preferences in care decisions (adapted from Rocques publication).
Click the link below to download the questionnaire used in this study.
Reflecting what cancer patients think today.
Download our guide: What patients say about treatment decisions
Joining the GYN Cancer Community is simple. Just click the button below. All you need to do is securely share your email address and set up a free personal account. Once your account is confirmed, you’ll have full access to valuable information, resources, and engaging forum conversations on topics that matter to you.
By becoming a part of this community, you’re not just gaining insights to help navigate your own journey—you’re also helping others by sharing your experiences. Together, we can support each other and make a positive difference in each other’s lives.
We can’t wait to welcome you.